Bringing Light and Hope to a Rare Disease

//Bringing Light and Hope to a Rare Disease

Bringing Light and Hope to a Rare Disease


Krist Schmitt Burr has Basal Cell Carcinoma Nevus Syndrome (BCCNS), a rare genetic disorder that affects the way the body grows and may lead to various forms of cancer, especially basal cell carcinoma, a form of skin cancer.  After having two affected children, Kristi founded the Basal Cell Carcinoma Nevus Syndrome Life Support Network, the only organization in North America dedicated to supporting families with BCCNS.

Click below to hear her story.

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By | 2017-09-18T06:54:37+00:00 August 22nd, 2012|Patient Stories|Comments Off on Bringing Light and Hope to a Rare Disease
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