Stories

Meet the remarkable patients who have found ways to add life to their days – to live every day to the fullest. I hope the stories are encouraging and meaningful for other patients and their families.

Share your story with us! Write to us about your journey or that of a loved one making the most of every day. Seizing the days takes many forms, so think outside the box about the many ways to enrich your life.



Patients and their families record their stories about Seizing The Days

The Latest

Bringing Light and Hope to a Rare Disease

Krist Schmitt Burr has Basal Cell Carcinoma Nevus Syndrome (BCCNS), a rare genetic disorder that affects the way the body grows and may lead to various forms of cancer, especially basal cell carcinoma, a form of skin cancer. After having two affected children, Kristi founded the Basal Cell Carcinoma Nevus Syndrome Life Support Network, the only organization in North America dedicated to supporting families with BCCNS.



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A Runner Builds A Running Organization

Kevin Stenstrom was a marathon runner and a Naval Flight officer who, during a routine physical, was diagnosed with melanoma. After several surgeries and months of cancer therapy, Kevin founded team Miles 4 Melanoma, a program that provides runners with coaching and individual training plans, all the while raising money to support the Melanoma Research Foundation.



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Ambushed by Skin Cancer Changed His Outlook

Joseph Sargente retired and soon after was diagnosed with skin cancer. He spent his whole life upset that life seemed unfair. Surviving cancer though, he realized how few people survived to retirement, let alone had more time left to live.



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Visiting Friends and Family Across 3,000 Miles

Joel Pautsch’s melanoma diagnosis had him feeling down and questioning his faith, but the support of his friends and family helped him continuing living “Live Until You Die.”



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Attitude is Everything

Jenna Langer created a blog – – after being diagnosed with myelodysplastic syndrome. She uses the blog to report on her own progress, comment on issues of public policy and express her own creativity.



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Breast Cancer Leads to Volunteering

Jamie Galloway volunteers her time supporting other breast cancer survivors. She provides them comfort and companionship, just as she was supported during her own battle with the disease.



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A Trip to Colontown

Erika Hanson Brown was diagnosed with colon cancer in 2002. Now she’s the mayor (and founder) of Colontown, a non-profit organization that serves as a social network for people fighting colon cancer. Or, as Erika calls it, “the face and the place for colorectal cancer survivorship”.



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What Cancer Takes, and What It Gives

Elissa was only 23 when she was first treated for breast cancer. After going two more rounds with the disease, she understood the journey and wanted to guide others who were travelling the same path. Now, she works with other breast cancer survivors, helping them to navigate the rough spots.



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A Nurse is a Two-Time Survivor Who Guides Others

Deb Stewart has battled breast cancer twice. A nurse by training, she now works with breast cancer survivors, lending her support and wisdom gleaned from experience. Her work is not only valuable to patients, it’s rewarding for Deb. Or, as she puts it, “You get more than you give.”



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A Breast Cancer Survivor Vows to Help Others

During her first hospital stay for breast cancer treatment, CJ was greeted by a volunteer who brought gifts to keep her spirits up. Later though, when she had metastatic breast cancer and was afraid of whether she would survive, there was nobody. Even at conferences, there were few speakers talking about metastatic breast cancer, and so CJ vowed to change that.



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